International Symposium on Dying Places

Programme

11 March

8.45-9.15 Registration

9.15-9.30 Opening Session

9.30-9.50 Opening Keynotes

The Escalating Demand for End of Life Care

Felicia Knaul, associate of the chancellor and distinguished professor of medicine at University of California, Los Angeles (UCLA) and chair of the Lancet Commission on Palliative Care and Pain Relief

The Importance of Place

Dani Mothci, director of the International Alliance of Patients’ Organizations

9.50-10.50 How Can Policy Ensure and Finance End of Life Care in Place?

Chairs: Sílvia Lopes (assistant professor at NOVA University) and Emma Belanger (associate professor Brown University)

Places of End of Life Care and Death in Health Policies of Four Countries

Sifra van de Beek, PhD student at University of Coimbra and Leiden University Medical Center (LUMC)

Latest Policy Developments in the UK and Romania

Irene Higginson, professor and director of Better Health & Care Hub at King’s College London

Nicoleta Mitrea, senior lecturer at Transylvania University and director of nursing education and development at Hospice Casa Sperantei

Panel Discussion

• Julie Ling, technical officer for palliative care at WHO Europe
• Satoshi Araki, economist at OECD
• Dirk Hadrich, policy and programme officer at the European Commission

10.50 – 11.20 Break

11.20-12.20 International Classification of Dying Places (ICP): Better Data to Better Care

Chair: Irene Higginson (professor and director of Better Health & Care Hub at King’s College London)

Presentation of ICP and Development Work

Barbara Gomes, research professor at University of Coimbra and lead of EOLinPLACE Project

Panel Discussion

• Andrew Hancock, chair of the UN Committee of Experts in International Statistical Classifications and principal analyst at Stats NZ
• Christoph Ostgathe, head of palliative medicine at University Hospital Erlangen and former president of the European Association for Palliative Care
• Emmanuel Luyirika, member of International Narcotics Control Board and former president of African Palliative Care Association

12.20-13.20 Lunch

13.20-14.05 PARALEL SESSIONS Preferences and Reality

1. Preferences
   Chair: Dorothea Touwen (associate professor at LUMC)

• Chetna Malhotra, associate professor and research director of Lien Centre for Palliative Care at Duke-NUS Medical School
• Sara Pinto, assistant professor at University of Porto
• Sifra van de Beek, PhD student at University of Coimbra and Leiden University Medical Center (LUMC)

2. Reality
   Chair: Jenny van der Steen (associate professor at LUMC)

• Satoshi Araki, economist at OECD
• Inês Dias da Silva, PhD student at University of Coimbra
• Paola Sillitti, PhD student at University of Lausanne

14.05-14.15 Break

14.15-15.00 PARALEL SESSIONS Charting End of Life Pathways

1. Adult Pathways
   Chair: Christoph Ostgathe (head of palliative medicine at University Hospital Erlangen)

• Joachim Cohen, professor at Vrije Universiteit Brussel (VUB)
• Emma Belanger, associate professor at Brown University

2. Pediatric Pathways
   Chair: Julie Ling (technical officer for palliative care at WHO Europe)

• Julia Downing, director of International Pediatric Palliative Care Network
• Krista Eckels, PhD student at University of Kansas Medical Center

15.00-15.30 Break

15.30-16.30 Impacts of Place on Carers and Bereavement

Chairs: Shannon Pfohman (director of Eurocarers) and Luc Deliens (professor emeritus of palliative care and president of Public Health Palliative Care International)

• Mariana Abranches Pinto, bereaved mother and director of Compassio
• Chetna Malhotra, associate professor and research director of Lien Centre for Palliative Care at Duke-NUS Medical School
• Maja Furlan de Brito, researcher at University of Coimbra

End of first day

12 March

9.15-10.15 The Future of Dying in Place: Insights from Thought Leaders

A Conversation to Shape the Next 20 Years of Care, Policy, and Research

Chairs: Barbara Gomes (researcher at University of Coimbra) and Liz Namukwaya (researcher at University of Coimbra and professor at Makerere University/Mulago National Referral Hospital)

Speakers:

• Emmanuel Luyirika, member of International Narcotics Control Board and former president of African Palliative Care Association
• Felicia Knaul, associate of the chancellor and distinguished professor of medicine at UCLA
• Irene Higginson, professor of palliative care & policy at King’s College London
• Jeroen Hasselaar, professor of palliative care at Radboud University Medical Center and president of the European Association for Palliative Care
• Luc Deliens, professor emeritus of palliative care and president of Public Health Palliative Care International

10.15-11.00 PARALEL WORKSHOPS Using the ICP

A. Using the ICP in Clinical Practice

Christoph Ostgathe (head of palliative medicine at University Hospital Erlangen) with Liz Namukwaya (researcher at University of Coimbra and professor at Makerere University/Mulago National Referral Hospital)

B. Using the ICP in Research

Joachim Cohen (professor at VUB) with Emma Belanger (associate professor at Brown University)

11.00-11.30 Break

11.30-12.30 A Global Lens on End of Life Care Taking Place into Account: Insights from ERC Research

Chairs: Lino Paula (head unit social sciences & humanities at European Research Council) and Jeroen Hasselaar (professor at Radboud University Medical Center and president of the European Association for Palliative Care)

Speakers:

• Barbara Gomes, lead of EOLinPLACE and research professor at University of Coimbra
• Lara Pivodic, lead of TRAJECT and research professor at VUB
• Jenny van der Steen, lead of CONT-END and associate professor at LUMC
• Susana Viegas, lead of FILM AND DEATH and assistant professor at NOVA University
• Anna Elsner, lead of ASSISTED and associate professor at University of St Gallen

12.30-13.00 Conclusions and Announcements

13.00 Celebration lunch